CAMP TWITCH 2019

LIVING SPRINGS

Every child

DESERVES ACCEPTANCE AND SUPPORT

Tourette Syndrome IS A

NEUROLOGICAL DISORDER

Tourette Syndrome

ISN’T A JOKE

Nau mai, haere mai, welcome!

Join our community and encourage those living with Tourette Syndrome to tic loud and tic proud!

Become a Member

Join our community/hapori of like-minded people to find friendship, support and take part in our events.

Attend Camp Twitch

Camp Twitch is our annual get together for those living with Tourette Syndrome and their families.

Hear our Stories

Our brave members talk candidly and openly about what life is like living with Tourette Syndrome.

Our vision

Is that every child born with Tourette Syndrome (TS) grows up in a world that supports and encourages them to be the best that they can be.
Awareness and acceptance of the diversity and celebrating the strengths and talents that our children/tamariki possess makes all the difference.
The Tourette’s Association of New Zealand’s mission is to grow fantasTIC kids who go on to lead the world one tic at a time.

What We Do and Why

Living with a disorder that is as physical and intrusive as Tourette Syndrome is challenging.
Being that it is a rare genetic disorder the diagnosis rates are low. In a small country like New Zealand often a child diagnosed with Tourette Syndrome, and his/her family, are the only ones in their school or town.
This can become very isolating when little is known about the disorder and feeling alone is a very common theme among our families.
It was the need to find support that lead to the Association being formed in 2013. That year it become a registered charity and has continued to grow in strength and numbers ever since.

Check out our Videos and subscribe to our channel!

Who We Are?

The Tourette’s Association New Zealand was established in 2013. It is governed by a board of trustees and is a registered charity.

How Can You Help?

  • Become a member
  • Donate
  • Volunteer your time
  • Fundraise For us

Camp Twitch 2019 – A week to remember

Living Springs camp and conference centre on Banks Peninsula always manages to take people’s breath away with its stunning views – and the staff and facilities are equally as fantastic.

We descended on Living Springs on Monday September 30th on a mild spring day. Despite a slight chill in the air there was no stopping the kids, young and old alike, from making the most of the visit from the local volunteer fire crew who turned their hoses on the water slide much to everyone’s delight.

It was an ideal start to what was a fantastic week. As well as the ever-popular madcap games played as part of the OlympTICS (a Tourette’s spin on the games) there was also a pirate-themed escape room challenge; a MasterChef challenge and a ‘Good guys, bad guys’ theme disco to entertain everyone. While the weather was true to form for Canterbury (we had hail, snow, rain and sunshine), and some of our planned outdoor activities had to be cancelled, when we did go outdoors we had a blast. The teenagers spent an afternoon tackling the Initiatives course – a range of outdoor obstacles to navigate as a team; while the younger children went for a visit down to the farm park where they got to see a sheep being sheared as well as go on pony and wagon rides.

A highlight for many at camp was when Sgt Andy Norton from the Christchurch central police station came for a visit. His story resonated not only with the kids but the parents too as he told how he thought that having Tourette’s would prevent him from joining the police. For years he was too afraid to even try to join but eventually decided to take the step – and, as they say, the rest is history. His message was to not let Tourette Syndrome stop you from following your dream. Be proud of who you are and don’t be afraid to tell people about Tourette Syndrome. His visit was made even more exciting for the kids when he allowed them to try on his cap, vest, handcuffs and sit in his police car.

All too soon camp was over and newly formed friends had to say goodbye amid tears and selfies. But all promised to be at camp again in 2020 – once you’ve got the camp bug you’ve got it for life.

A big thank you has to be said to all of those individuals and companies that helped make camp so special for all of those who attended. To Tracy Kennedy and Catherine McHaffie who so generously donated to allow two families to attend; to Mother Earth and Pop ‘n Good popcorn for supplying goodies for the goodie bags; Inner Wheel Orewa/Whangaparoa for donating their fundraising dollars; the Mainland Trust for funding our activities; for Pub Charity for funding our funky camp t-shirts and Youthtown for funding the purchase of ukuleles so that we could have music therapy session. Thanks also to Cambridge Septic Tank Services and Branderson Homes for donating too. To Steve Bone for capture memories of camp for years to come with your amazing photographs and video footage (and being a nice guy on top of talented).

Without the following people camp would be chaos so a big shout out to: Caroline Crosby; Anna Dewhurst and Raewyn McCracken; Hayley Seath, Connor Murdoch and Robyn Martinovich; the
teenagers who step up to mentor the younger children; the parents who lent a hand with cleaning up and supervising games and activities – you are all legends.

Bring on Camp Twitch 2020!
Robyn Twemlow

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Telephone: (03) 940-9420

info@tourettes.org.nz