Tourette’s Association NZ’s Vision
To support and empower people with Tourette’s to feel accepted within the wider community
We respect all people, value diversity
and are committed to equality.
We value to voice of our
members with Tourette’s.
Providing families and young people with
We recognise the contribution of
volunteers and our members.
Working with community to reduce the stigma
of people living with Tourette’s.
TANZ is a credible national voice
with transparent practices.
To host a number of gatherings and events for people and families living with Tourette’s
To be the number one resource on all things Tourette’s
To reduce the stigma people with Tourette’s face in the community
To have Tourette’s recognised as a disability in New Zealand
To establish a facility in Canterbury for individuals and families with Tourette’s
TANZ is a sustainable organisation
What is Tourette Syndrome?
Tourette Syndrome (TS) is characterised by vocal and motor tics that range from mild to extreme in severity. Individuals can have singular tics, however both vocal and motor tics have to have been present for at least a year for an individual to be diagnosed with TS.
Why is it called Tourette Syndrome?
The syndrome is named after Georges Gilles de la Tourette, a French physician and neurologist. He was credited with defining the syndrome in 1885 after spending many years studying why certain people displayed sudden twitches and vocalisations.
What causes TS?
Tourette Syndrome (TS) is a genetic, neurological disorder that occurs during childhood. Not all children that inherit the TS gene display the traits that are associated with the disorder. Boys more commonly inherit the gene associated with TS. The ratio of girls vs. boys being diagnosed with TS is 1:4.
Is there a cure for Tourette’s?
No. At the moment the exact gene and neurons that cause TS are not known so there is no cure. Medication can in some cases help with suppressing the tics associated with TS.
Do the tics go away?
Remission can occur in adulthood. Some literature reports that 1/3 of adults have no tics; 1/3 still occasionally have mild tics and 1/3 will continue to have the same level of tics.
How many children in New Zealand are diagnosed with Tourette Syndrome?
The New Zealand Organisation for Rare Disorders endorses the Australian Tourette Syndrome Association statistics of 1:1000 children having TS. Not all of those with TS will be diagnosed with TS due to the mild nature of their symptoms.
Is Tourette’s a mental health disorder?
No, TS is not categorised as a mental health disorder. However many of the disorders that co-exist with TS like ADHD, OCD or depression are recognised mental health disorders and the psychological impact or issues associated with TS are treatable by mental health practitioners.
Does everyone who has TS swear?
No. Only a small percentage of those diagnosed with TS have coprolalia – an extreme vocal tic that causes the person to repeat inappropriate words.
What does ‘comorbid’ mean?
This term is used when a disease or disorder occurs simultaneously with another disease or disorder.
Will having TS shorten my lifespan?
Those diagnosed with TS can expect to live to normal life expectancy.
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